Often times, long before Krabbe symptoms appeared, Jud and I would be playing or talking, and I would be so overcome with his sweetness, cuteness, or humor, that I wanted to savor him forever.  So, I would ask, “Can I keep you, Jud?  I want to keep you forever.  Can I keep you?”  I asked

God is gracious. When we look at Jessie, we cannot help but be reminded that God has been extremely gracious with us. The manner in which Krabbe disease manifested in Judson’s body reflects how God has His loving hand upon us.  90% of children with Krabbe disease are afflicted with symptoms within the first several

Dear friends and family, We are amazed at the love and support that is pouring in. We cannot thank you enough! Each moment continues to reveal new feelings, pains, hopes, and peace. Our emotions ebb and flow, but they are grounded in our Father’s love for us, His love for Jud, and a thankfulness for

It feels like one of my limbs was slowly ripped off, and now that it is completely gone, the wound is exposed, raw and deeply painful.  The loss of Judson leaves a huge, gaping hole in our lives, like a leg that was once part of the body, is now gone.  I know that over

With Jud’s death, there is a temptation to ask God, “Why have you forsaken me?  Why have you forgotten me?” Right after Judson died, I picked up my “Morning by Morning” daily mediations by Charles Spurgeon and turned to the reflections for that day, November 7.  Oh how fitting were his thoughts that I have

Though we know that death here on earth is inevitable for everyone, it still seems strangely foreign, often shrouded in troublesome mystery.  However, Judson’s recent passing has tangibly reminded me of the very real hope that death can be synonymous with life. Judson’s last morning here on earth was, unfortunately, filled with tremendous suffering, even

I woke up this morning with this song running through my head.Oh, that I may live with the understanding that God is “more than enough for me.” You are my supply My breath of life Still more awesome than I know. You are my reward Worth living for Still more awesome than I know. And

Dear family and friends… The last several days have been very difficult, but we continue to be significantly touched by amazing love and support, near and far. We are tremendously grateful to all who took time out on Veteran’s Day to memorialize our precious boy. We were moved by the presence of so many and