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Heartache and Hope

Familiar and Foreign

My grief has reached adulthood. 18 years old. I don’t know how we got here, but just like child-rearing, the days have been long and the years have been short. 18 years without my boy!

Watching videos of my Jud Bud today, I was struck by how familiar those moments feel while simultaneously experiencing them as incredibly foreign. I can recall my lived emotions in each documented moment, encountering them all over again, but now with the perspective of loss. Yet, my life with Jud also feels concurrently foreign—strange, unknown, distant—so alien to my life now. It’s remote. It’s a life never fully explored. It stunted. It’s not accessible. It’s obscure.

I feel the intimacy of the familiarity of my life with Jud along with the vastness of its foreignness all at once. It wrecks me.

Instead of raising my boy into adulthood, I’ve raised my grief into adulthood.

Yet as I watched his videos, I also kept imagining all of this brokenness fully redeemed, where hindsight will deem it light and momentary, where all that’s been lost is fully restored. I imagine myself bowed before the King of kings as Jud comes running to me. And whether he’s 18 years old, 36 years old, or still just about to turn 3, oh what joy it will be!

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Exciting Things Coming

Judson’s Legacy has been in a bit of a holding pattern through the worldwide covid crisis, but there are exciting things on the horizon. Keep your eyes and ears posted.

Categories
Heartache and Hope

Teenager

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My dear birthday boy…

I’m blowing my mind that you’d be a teenager today, Juddy. How is it even possible that my little boy who loved singing nursery rhymes, playing with his train set, and driving his Matchbox cars all over the carpet would be turning thirteen today?

But it’s the “would be” that puts a lump in my throat. You would be turning 13. You would be going through puberty. You would be in junior high. But there are so many “would be’s” that are unknown, never to be revealed. I don’t know what you would be interested in. I don’t who would be your friends. I don’t know what would be your personality as a teenager. The unrevealed “would be’s” make the distance between us feel more pronounced over time, because the “would be’s” are constantly moving farther and farther from what was.

But “what was” remains beautiful. What was once my precious, little blonde boy who talked as if he had much to communicate in a short amount of time, is still my beloved child with whom I am incredibly proud. I love you so much, Jud Bud! What was is seared on my heart in such a way that you are part of the fabric of my every breath. What was impacts everything that still is for me.

You, my Mr. Man, aren’t doing the things that I fully expected you’d be doing 13 years after you were born, 13 years after that incredible Christmas Eve when I embraced you for the first time. It hurts. It chronically hurts. But the acute pain makes me continually conscious of the Kingdom where you now reside, of the life of wholeness you now live—the life for which I long. And I constantly dream of the day. I dream of the day I will embrace you again, when the many years that have separated us feel like a blip in light of eternity with our Savior.

But right now I’m living in that blip. I’m living in the blip of our separation and it feels like a really long, hard stretch of time. Yet, I want it to matter. I want it to be a blip of substance and purpose; I want it to be a blip that continues to communicate the message of your short life, a message filled with joy, hope, and peace in the midst of pain. I want the blip to reflect Jesus.

You would be turning thirteen today, Jud Bud, and what was your life here on earth still is a blessing. “I love you twelve!”

With all my heart,
Mommy

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Our Latest News

Tenley Thompson Memorial

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Drake and Christina had the honor of attending Tenley Thompson’s memorial service in Spicer, Minnesota on November 4th, 2017. Tenley was a little girl diagnosed with later-onset Krabbe Leukodystrophy who lived to the age of seven and readily gave her smile ot anyone from whom she received love. She touched many hearts and lives in her life and is deeply missed by many.

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Flood the Stone

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We are so honored to have had the band Flood the Stone dedicate their latest music video “Holding You” to Judson. Here is the video:

Thank you for honoring Judson in this way!

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Join the 12/24 Campaign

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We invite you to be part of our 12/24 campaign developed in honor of Judson‘s birthday on Christmas Eve. Our 12/24 partners will help our ministry grow by expanding our life-to-life care for families who are facing the “valley of the shadow of death” with a child afflicted by a leukodystrophy disease. We are committed to being a voice of hope and a presence for these families in the midst of grief and suffering.

There are several ways to join our 12/24 campaign and make a difference in the hearts of the hurting:

 

DONATE

Thank you so much for your support and for making a difference in the lives of those who are suffering.

With gratitude and hope,
The Judson’s Legacy Team

 

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The Campaign Continues

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One of our hopes at Judson’s Legacy is to help give the Krabbe and Leukodystrophy communities a stronger voice, a bigger presence, and a more powerful platform to affect change…together! We are grateful the #WhiteMatterMatters Campaign is helping to unite efforts and raise awareness.

The following video is another one of our projects in the #WhiteMatterMatters campaign. #WhiteMatterMatters deeply to our community and those whose lives have been torn apart by leukodystrophy diseases, but we need it to matter to others too. We are grateful to the many who have been moved to help take up our cause with us!

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Our Latest News

White Matter Matters Campaign

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We are excited to have initiated the White Matter Matters campaign for September’s Leukodystrophy Awareness month. Help us spread awareness that #WhiteMatterMatters! Learn more about the campaign and follow the action on Judson’s Facebook page.