Judson's Legacy

Judson’s Legacy

Familiar and Foreign

My grief has reached adulthood. 18 years old. I don’t know how we got here, but just like child-rearing, the days have been long and the years have been short. 18 years without my boy! Watching videos of my Jud Bud today, I was struck by how familiar those moments feel while simultaneously experiencing them

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Teenager

Teenager

My dear birthday boy…

I’m blowing my mind that you’d be a teenager today, Juddy. How is it even possible that my little boy who loved singing nursery rhymes, playing with his train set, and driving his Matchbox cars all over the carpet would be turning thirteen today?

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Join the 12/24 Campaign

Join the 12/24 Campaign

We invite you to be part of our 12/24 campaign developed in honor of Judson‘s birthday on Christmas Eve. Our 12/24 partners will help our ministry grow by expanding our life-to-life care for families who are facing the “valley of the shadow of death” with a child afflicted by a leukodystrophy disease. We are committed

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The Campaign Continues

The Campaign Continues

One of our hopes at Judson’s Legacy is to help give the Krabbe and Leukodystrophy communities a stronger voice, a bigger presence, and a more powerful platform to affect change…together! We are grateful the #WhiteMatterMatters Campaign is helping to unite efforts and raise awareness. The following video is another one of our projects in the #WhiteMatterMatters campaign. #WhiteMatterMatters deeply

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White Matter Matters Campaign

We are excited to have initiated the White Matter Matters campaign for September’s Leukodystrophy Awareness month. Help us spread awareness that #WhiteMatterMatters! Learn more about the campaign and follow the action on Judson’s Facebook page.  

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