I fell into a heap of tears this morning, experiencing the full extent of my weakness, fragility, and vulnerability. Then I began to think of the numerous radio interviews I’ve been doing recently, speaking of hope and God’s work in and through my pain.  I started wondering what those listeners might think if they heard

Photo courtesy of Jenny McMasters Photography Dear Judson… For awhile it felt like just yesterday that I had been snuggling you, running my fingers through your hair, kissing you to pieces, and sharing the simple joys of life with you.  But those experiences are so distant from me now; everything has changed since the day

“Do you still think about Judson much?” my neighbor, whom I’ve only known for a few months, recently inquired. I responded with a curious look, wondering what prompted her question, but touched she was thinking about my boy. She continued, “The only person I’ve lost in my life is my grandma.  It was a couple

I was watching a TV show online last night when a 30-second commercial came out of nowhere and punched me in the gut. A little, diaper-clad baby with beautiful, bare skin was laughing and giggling with delight as she lay on her back playing with her feet.  A deep voice began to narrate, “You will

“I show Jud’s video all the time to doctors and researchers.  It has such an incredible impact!  I call the later onset form of Krabbe…Judson’s disease.  I wouldn’t be surprised if one day it is known as such.” — Dr. Patti Duffner, Hunter James Kelly Research Institute One of the ways Judson’s Legacy is committed

So why are we currently running a campaign to raise $20,000 to build a Myelin Repair Lab at the Hunter James Kelly Research Institute? Of course, part of the mission of Judson’s Legacy is to raise money to treat and cure Krabbe Disease.  But beyond the obvious need for funding rare-disease-research, why does our organization,