Dear family and friends…
As Drake is currently away at a work-related conference, I find myself thinking back to the day when I asked him to come home from this same conference four years ago out of concern something was seriously wrong with Judson. Drake left and returned home immediately without any idea our world was about to agonizingly change.
It has been four years since Krabbe disease entered and altered our lives forever, but time has only served to strengthen our resolve to share Judson’s life. God has been using Jud’s story and he is affecting change—change in people, change in research, change in legislation, change in awareness, and more.
To that end, we have spent the last six months working with a lawyer (thank you O’Melveny & Meyers for your pro bono legal assistance) to hone, re-hone, and hone again our mission and purpose for Judson’s Legacy.
Judson’s Legacy will exist to share the life and story of Judson Levasheff in order to:
- * Demonstrate God’s compassion.
- * Encourage, challenge, and comfort people with the hope of Jesus Christ.
- * Raise awareness and fund research for leukodystrophies, especially Krabbe disease. (A portion of our proceeds will go directly to the Hunter James Kelly Research Institute.)
- * Partner with organizations that minister to those who suffer.
This step of incorporation is intended to give direction and accountability to our ministry while also allowing people to come alongside us in support of our mission. It will help to stremgthen our current efforts will also enabling us to expand.
As we take this next step, we have a number of start-up costs, which include making the award-winning documentary “Judson’s Eyes” available—if you feel inclined to begin partnering with our organization to help with some of our initial expenses you can use the following Paypal button to make a donation. Please be aware that since we do not yet have 501(c)3 status, donations are not yet tax deductible.
Any financial assistance, no matter the amount, is a HUGE gift as we know there are so many amazing organizations, large and small, that are worthy of support.
Thank you for caring about our little family. We are keenly aware that so many of you have undergirded us throughout this journey in a multiplicity of ways and have already been partners in our ministry. Thank you for your love and support! We would be blessed to have you continue lifting our family in prayer along with the ministry of Judson’s Legacy—especially that God would bless our efforts and provide the resources necessary to do what we believe he has called us to do.
So much love and gratitude,
Christina (on behalf of Drake too)