Judson's Legacy

A New Year


It’s 2012!  And with a new year comes renewed hope and anticipation for the future.

We are especially delighted to have just signed the last major documents that will move Judson’s Legacy from a pending non-profit to official status as a 501(c)3 organization.   We expect we are just one or two months away from fully launching Judson’s Legacy!  This is a sobering and exciting notion!!!

It has been a long journey getting to this milestone, but we are grateful for all God has been doing to prepare our hearts, give us partners in our ministry, and provide necessary resources.

Our mission, through the sharing of Judson’s story, continues to be propelled by a longing to see God move and change hearts as we witness to his compassion, comfort, and hope through our own suffering and loss.  Meanwhile, we will now be making more of a concentrated effort to raise awareness of Krabbe and fund research for leukodystrophy diseases.

Judson has already been having a significant impact on the research community.  Dr. Patti Duffner, one of the premiere researchers of Krabbe, regularly shares Jud’s story in her presentations about the disease.  In an email to me she indicated, “I use Jud’s video all the time and it has such incredible impact!  I call the later onset form of Krabbe…Judson’s disease.  I wouldn’t be surprised if one day it is known as such.”  We are honored by her words and even more convinced of our calling to allow Jud’s life to shape future research.

In a nutshell, Judson’s Legacy exists to change lives for the Kingdom while supporting efforts to give Krabbe Kids a chance at life on earth.

If you would like to help us make a difference, you can join our mailing list for updates and announcements.  Simply click “Connect With Us” then “Subscribe” and fill in your name and email address.

And as an organization run completely by volunteers, we are pleased to have every donated dollar directly benefit the mission of the organization.  You can make a tax-exempt donation through Paypal by clicking the link below:


Thank you for allowing Judson’s story to touch your life and helping us touch the lives of others!

More to come…

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