It is an special gift for Christina to be invited back to share again at the Drive 4 Hope golf tournament benefiting the Hunter’s Hope Foundation, one of our partner organizations. She discussed the need for universal newborn screening and how there IS hope for Krabbe disease.
The Drive 4 Hope was created in honor of Jacquelyn Scott, the daughter of Rod & Kathleen Scott of Camarillo, CA. Jacque was born July 10, 2002, a healthy 10 pound baby girl. At 11 months old she was diagnosed with Krabbe Leukodystrophy.
In memory of their precious Jacque, the Scott family has been committed to making a difference for Krabbe disease!