Wear “Jeans for Genes” and show your support for Rare Disease Day today!
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Category: Our Latest News
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Rare Disease Day
Join us in recognizing Rare Disease Day on February 28th. Wear “Jeans for Genes” and show your support for the 1 out of 10 people who are affected by one of over 7,000 rare diseases–a large percentage of which afflict children.
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The “K” Equals Kindness
Christina enjoyed the opportunity to speak at the Irvine National Charity League where she shared about “K” in “PINK”–Kindness!
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Money for Research
Because of the generosity of Jud’s Buds in 2013, Judson’s Legacy was able to donate $4000 to leukodystrophy research last week. We trust and pray these funds will be used to help find a cure for Krabbe disease!
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Judson’s 9th Birthday
Judson would be turning nine years old this Christmas Eve. Judson’s Legacy celebrates his short life and the impact he has made, while we deeply grieve his absence. You are super loved, Jud Bud!
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It’s LIVE!
Welcome to the all new JudsonsLegacy.org! Over the last year Judson’s Legacy has undergone re-branding and a complete web overhaul to better refelct the mission of our organzation. And after all the love, sweat, and tears involved in the process, we are excited the site is finally LIVE!
We hope you will take the time to look around and discover all that’s new:
- New resources for Hope in Suffering
- A newly developed area focused on Helping the Hurting
- Our new Krabbe Disease Info. Graphic
- Our Blog: Heartache & Hope
- Numerous ways to Get Involved
- And so, so, so much more!
We also want to take a moment to express tremednous gratitude to Akins Parker Creative and Trusted Web Solutions who provided all their services PRO BONO, making our visions for the all-new JudsonsLegacy.org a reality!