Judson's Legacy

Krabbe Kids

KRABBE HEROES

Let your heart be moved by the lives of these Krabbe Heroes (scroll over for their names/dates and click to view their web page)…

Dylan Thomas: 7/29/11 ~ 11/11/14
Eilish Anne Brown: 11/1613 ~ 9/9/14
Emma Daniels: 7/20/09 ~ 3/24/12
Emma Sharp: 7/16/11 ~ 4/16/13

Anna Taylor 4/28/13 ~ 4/2/15
Lucas Scott
Cade Huitema: 11/6/12
Dylan Joseph Changle: 4/15/09 ~ 12/22/2009

Hannah Ginion: 1/15/13 ~ 12/28/14
Harry James Butler: 5/7/13 ~ 2/25/15
Matthew Shilling: 11/17/88 ~ 12/23/07
Max Barnett: 2/6/14

Victoria "Tori" Ruth Brackbill: 7/30/14
Caoilainn Nicole: 7/20/14
Mabry Kate Webb: 3/13/14 ~ 2/7/15
Owen Baxter Webb: 3/30/15 (Transplant Hero)

Blaine Matthew Schroeder: 3/10/13
Evalina Ruiz Gonzalez: 1/28/12 ~ 1/29/14
Gemma Rose Ward: 9/3/13
Parker Shoemaker: 11/9/14

Frankie Forgione: 8/28/09 ~ 1/1/11
Collin Cushman: 12/19/10
Brody Bensel: 2/20/08 ~ 2/11/11
Anthony Caruso: 11/28/74 ~ 8/27/76

Alyjah Williams: 8/19/12 ~ 3/18/14
Madylen Grace Burk: 8/3/06 ~ 9/2/07
Jackson Robert Wallace: 04/18/2013
Ailene Maraya Garcia: 11/2/03 ~ 10/20/07

David Aaron: 12/2/97 ~ 3/19/99
Noa Groba Goberna: 10/29/09 ~ 3/24/11
Trevor Aldrian: 11/5/08
Lillian Grace Smith: 9/26/11 (Transplant Hero)

Lauren Olivia Loughheed: 1/8/11 ~ 4/13/15
Trevor Leeker: 5/14/00 ~ 2/17/01
Karis Almy: 6/29/09
Terry M. Hallock, III: 9/25/01 (Transplant Hero)

Michael Wilson: 9/25/10 (Transplant Hero)
Makinley Mills: 9/19/06 ~ 12/22/07
Matthew Thomas O'Brien: 9/9/10 ~ 2/2/13
Marshall Wilson: 6/15/09

Lucas Cole Nims: 4/15/99 ~ 8/24/13
Linda Jane Claverie: 3/4/84 ~ 1/28/85
Liam Hammonds: 8/4/00 ~ 6/19/01
Kyle Heidrich: 6/19/08~ 11/29/13

Jacquelyn Michiko Scott: 7/10/02 ~ 2/10/07
Jessica Claassen: 3/2/10
Katalina Monet Ranken: 7/19/02
Kenan Spencer Witczak: 2/5/11

Jack Macpherson: 7/28/06 ~ 4/29/08
Isaiah Amador: 11/27/11 ~ 1/14/12
Greyson Morris: 12/18/07 ~ 12/12/08
Ginevra Arnieri: 12/16/10

Gabriel Jimenez Vasquez: 3/30/10 ~ 7/20/13
Daisy Sofia Hamid: 7/4/10 ~ 5/2/11
Dylan May: 1/16/04 ~ 1/6/09
Evie Beth Sugden: 2/21/01 ~ 1/21/02

Zander Mohr: 6/20/14
Tenley Thompson: 5/7/10
Leandra Dawn Frye: 02/03/01 ~ 12/28/03
Joey Forte: 12/7/13 ~ 6/6/15

Anthony Mattina: 12/27/01 ~ 3/20/04
William Branch: 6/2014
Francisco Benjamin: 1/5/07~10/27/07

 

If you have a child with Krabbe disease, we would be honored to include them here.
Please send us an email with their photo, birthdate, date of passing (if applicable), and a weblink for your child (if applicable). We are so grateful to be able to share these Krabbe Heroes!

 

What is Krabbe Disease?

Highlighted Hero

Tenley Thompson
Born: May 7, 2010

 

“Tenley, is our first child and the light of our world. She is 5 years old and affected with late-infantile Krabbe disease. Initially, Tenley lived like every other child — crawling, eating, and talking until she was 13 months old. Then she started to regress and could no longer stand, she lost her ability to sit, she stopped being able to eat by mouth, and then could no longer talk. At 18 months old Tenley was diagnosed with Krabbe disease; she now has the motor skills of a newborn, but the cognitive skills of a child around 6 years old.

Tenley is a gift and we include her in everything that a typical child would experience. She has a smile that lights up a room, loves to snuggle, gives and receives kisses, dances with her dad, and goes to school. Tenley attends public school and is just starting kindergarten. She has a communication button that she hits with her head so she can communicate with her teacher and classmates.

Tenley absolutely adores animals! Dogs, goats, bunnies, horses and the list goes on…she loves them all and they are very therapeutic for her. Tenley has her own dog named Hope; Hope and Tenley are glued at the hip and spend countless hours snuggling.

Tenley is an amazing little girl that has taught so many people how important life truly is. We thank God everyday for placing her in our lives!” ~ Emily & Trent Thompson, Tenley’s Parents

Follow Tenley and her journey at…

Team Tenley