September is Leukodystrohpy Awareness Month. Every leukodystrophy disease is rare and devastating!

  The Levasheff’s look forward to spending the week with their leukodystrophy family at the Hunter’s Hope Medical & Family Symposium. Not only do they gain insight into the latest research developments but also delight in the camaraderie with people who have walked a similar journey. Judson’s Legacy is grateful for Hunter’s Hope and the

On Tuesday, June 17th, 2014 we will be doing our first electronic Silent Auction on Judson’s Facebook page  for one of these limited-edition (only 50 exist) replicas of Judson’s favorite race car shirt. The shirts were graciously created for the Levasheff family in 2010 by Target and Cherokee Clothing when they learned of Jud’s connection to their

The Levasheff family had the privilege of sharing Judson’s story and their journey of faith in suffering with the youth from the Los Angeles Inner City SAY Yes program. The students had seen the film “Judson’s Eyes” and asked if Drake & Christina might be willing to come and speak with them in person. The kids had prepared

This is Willmya, a darling 8-year-old girl in Colorado who is a big support to Judson’s Legacy.  Willmya’s mom Donna contacted us about starting a Judson’s Legacy Street Team — a homegrown movement using your own gifts, passions and circle of influence to support the cause. We sent them JL wristbands and information to distribute and they

It is an special gift for Christina to be invited back to share again at the Drive 4 Hope golf tournament benefiting the Hunter’s Hope Foundation, one of our partner organizations. She discussed the need for universal newborn screening and how there IS hope for Krabbe disease. The Drive 4 Hope was created in honor of Jacquelyn Scott,

Because of the on-going generosity of Jud’s Buds we were able to donate another $1800 directly to a leukodystrophy research project this week. To date, Judson’s Legacy has given $108,558 straight toward research. We pray that each dollar will be used with wisdom, insight, and expertise, allowing it to tangibly make a difference in the

Mother’s day can kick up a whole host of emotions for so many women. Whether it be an unfulfilled longing to be a mother, miscarriage, estrangement from children, the loss of a mother, or the loss of a child, there can be so many reasons that Mother’s Day is far from being a happy occasion