Judson's Legacy

Heartache and Hope

The Cracked Code

The Cracked Code

The pinnacle pursuit of our culture is to be happy. The meaning of life is frequently described as achieving a state of happiness and oftentimes the parental role has been reduced to a means of simply guiding our children into happiness. The pursuit of happiness is even written into the fabric of American government as an inalienable right to be protected. We’re a people who want to be happy. But what does it mean to be happy? And what happens when life’s circumstances are anything but happy? …

Continue Reading

When You Show Up

When You Show Up

I’ve heard people describe how much days like these can be a blur with an existential feeling of hovering above the experience rather than being central to it—I encountered this at our son’s memorial service; much of the day felt illusory and impossible to fathom, as if reality had been suspended. But there is something etched in my memory…

Continue Reading

Lauren’s Song

Lauren's Song

A window of opportunity had opened, so I tentatively asked, “Can I hold her?”

“Well, you can sure try, but she doesn’t always take well to strangers,” Amanda cautioned. This is a phrase commonly expressed by moms of infants or toddlers when someone asks to hold their baby, but in this circumstance, it was unusual…

Continue Reading

Never Get Used To It

Never Get Used To It

I never get used to it…that moment when death, the death of another leukodystrophy child, stops me cold in my tracks. Even as the world around me keeps spinning — little girls running through my home, laundry churning in the machine and neighbors talking outside my door — I suddenly find myself…

Continue Reading

Not Our Usual

Not Our Usual

Today is Easter. In our family, Easter is usually set aside as a day to gather with loved ones in remembrance of the resurrection of our Lord Jesus and the hope therein. Drake and I are not home today. We are not…

Continue Reading

United with Him

United with Him

Jesus Christ rose from the dead. This is the foundation of the Christian faith. Without the resurrection of Jesus, our faith is impotent and futile. But because Jesus is alive, having conquered death, we are invited into life-giving relationship with him…now…

Continue Reading

The Tough Questions

The Tough Questions

In losing her brother at the mere age of one, Jessie’s journey of grief has been especially unique; she has slowly come into realizations about Judson’s death as her understanding of the world has expanded. And with each new revelation a new layer…

Continue Reading